Sunday, March 7, 2010

I'm pissy!

I get really tired of "experts" not even seeming to give any idea/thought/concern (even from someone who has lived with his body and the rare disease for 38 years) a second thought. Especially for a rare disease that not much is known about in the first place!

From the research I have done blood pressure CAN AFFECT the eyes. ESPECIALLY THE RETINAS, so in mind if a medication is designed to affect the blood pressure, it could in the rare instance (like CHM) affect the eyes. ESPECIALLY the retinas which in the case of CHMers are already damaged!!!

It's frustrating to not even get a "maybe" or at least a honest "not enough research has been done on that yet"

No comments:

Post a Comment